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Home » Medical

Cholesterol and Real Food

So many people I know struggle with Cholesterol. I have never had that problem. I have always had low cholesterol…all the way around. This includes low HDL which is the good cholesterol that supports healthy artery walls.

Recently my company announced that we would be required to take Biometric screenings or our insurance would go up by $70 a month. With them we were still subject to a $50 a month increase :( Either way part of it was a lipid panel. Originally, scoffed at the mere thought of a stupid physical. I told my husband, that it meant that they could track my health, and see who is really costing the company money. The results I got were pretty impressive though.

 

What did I notice from mine?

Historically my cholesterol has been right about the 113 range. This time we have been on a real food, no grain diet for right at 11 months. When I went back to find my last blood draw, I realized that I had stopped keeping them since they were all pretty much the same. So the most recent one I could find was 2008. My diet did not change much until 2011, and I had been eating a Standard American Diet of fast food and Slurpees. I was exercising sporadically, now I exercise even less frequently…unless toddler chasing has become a sport.

Procedure

Result 08

Result 12

Triglycerides

82

57

HDL

47

82

LDL

52

51

Total Cholesterol

115

144

 

What is normal?

Procedure

Normal Range

Triglycerides

Less than 150

HDL

Greater than 39, best above 60

LDL

Less than 100

Total Cholesterol

Less than 200

 

Source: WebMD

 

So what have I learned?

I already knew that 75% of what you see in the mirror is what you eat. Now I know that 75% of what you see on a slip of paper is also in what you eat. I often curse diabetes, but it has most certainly saved all of us from the inevitable crash most Americans hit at one point or another. Well played diabetes…well.played.

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1 Year and More

2012-08-09 20.13.23

 

August 9 marked D’s 1 year anniversary since diagnosis. We “celebrated” by taking a vacation. We spent 2 nights in Miami and 6 nights on the island St. Lucia…together..as a family. We really enjoyed taking in the local culture, an d getting away from the world. Above is a picture of D, listening to a local blues musician one evening during family time.

2012-08-15 06.57.14It may seem silly to some that we celebrated D’s 1 year Diabetes birthday, but to us it meant an additional year with that sweet boy that we almost lost the same day a year prior.  It meant one year of surviving endless finger sticks, site changes, low blood sugars, and high blood sugars.

It has been a year of struggles for sure. I continue to struggle to know when to trust medical staff that tells things like, "if he has an infection he needs antibiotics, that is the only way it will get better.” or “I worry about how any b-vitamins he is getting without grains.” Our last visit was the best one we have had in a long time. Our numbers were still crappy, but I felt listened to.

During our last stint in the hospital with DKA. I felt anything but listened to. We were struggling with an endless loop of highs –> give insulin –> realize it was too much –> give carbs –> D voraciously eats too many carbs while his BG was dropping –> Repeat cycle. I had tried to explain this to the nurse in the hospital, she told me that he needed more insulin to combat ketones or more carbs if his BG was low, and I tried to explain this to the nurse at our last doctors visit without much impact. Finally this time I was able to show it easily in his BG logs, and the doctor listened and saw the same pattern I did. It went something like this 6AM BG = 375 Ketones = 4.4, give 1U sick dose, 7:30 AM BG =100 give 15 carbs as a free meal, 8:00 AM BG = 105 give 15 carbs as free meal, 10:45 BG 150 resume normal activity.  It relieved me to no end to have her see the same thing I had, we were giving way too much insulin. So instead of her saying that he needed that insulin when he had a high BG or high ketones, she took notice and reduced his ketone dose when below 400m/l.

Another change that we made recently was breaking away from what the nurses originally recommendedC1_Silhouette_paradigm_r2 as far as infusion sites. We use a Minimed pump and strongly urged to use the Silhouette infusion site seen on the right. This worked well for us for about 4 months, and slowly but surely we started having problems with bad sites. Sites that would work for a day then start giving horrible BG readings as soon as a day.

We tried both insertion manually (I relate that like landing an airplane come in nose first and flatten our when you enter the skin) and with the SilSerter insertion tool outlined in the video below. Nothing was helping, I felt like a broken record. I was always telling them how his sites went bad so easily and how we weren’t sure what was going on. I felt like I was pinning bad BG on a device and not the disease.  We played with basal rates and all sorts of numbers and just couldn’t figure it out, but I felt trapped by this stupid infusion set. I felt like I couldn’t even be alone with my child because it took two of us to get the stupid thing in him. I remember one night BG had been an average of 300 or so for half the day (despite the amount of insulin I gave via pump), and my husband was not going to be home until after 9. I remember how smothering it felt not to be able to care for my own child by myself. I remember knowing that I could give him an injection of insulin, but being apprehensive because of I knew that he would drop like a stone and I would be back in that cycle.

 

After all these times of me mentioning bad sites, poor insulin absorption, and our constant battle with a toddler to get the site inC1_OldMioImage. We had toyed with switching type of sites, but had been apprehensive there based on the information provided to us by the nurses. We did try a different type once and immediately had a bad BG reading with ketones and were scared away. Later we realized that we had setup the site completely wrong, thus the bad reading. I began to look at what other options were available about 3 months ago. I called Minimed for samples. They provided me with samples to test out. The first try with the Mio my husband was able to get started…by himself…without getting racked…and without tears from any party involved. We knew immediately that this was the infusion set for us. Three days later when the site was still working, we were more than convinced. I called our rep and traded out unopened boxes and we haven’t looked back. Our son’s attitude was noticeably better within days. I am sure because a) his BG was under better control b) he wasn’t getting stuck every 24 hours or less and c) he wasn’t let with red angry sores for days after each removal and marks for weeks. Since changing we have also noticed the track marks on his hiney and legs are completely gone.  Just two days ago, while my husband was away from the house I was able to change his site on the regularly scheduled and recommended Day 3, by myself while my son was watching TV…without issue. I still left the old one in just in case, but I ended up not needing to fall back to it.

Now this is the portion where I beat myself up a bit.

Why it took almost a year for us to grow a backbone is beyond both of us. We both have lamented to each other about not trying something different sooner. We both KNEW that he wasn’t getting insulin, but just assumed based on what we were told that it was completely normal for toddlers to have issues with pump sets, and that daily changes were just in the cards. We are D’s only advocates here. Drs and Nurses are here to help, but we are the only ones who can stand up for what we know is going on. We both feel horrible about putting him through everything for as long as we did, but grateful we figured it out and took action.

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Just 3 Letters…D.K.A.

BG

Who would have thought just 24 hours after this picture was taken at Scarborough Faire that we would be battling ketones and debating the awful trek to the hospital. This was a Sunday, and all day we were happy and playing and having a great time. We were having an even better time of keeping up with low blood sugar. We expected this due to his high level of activity.

 

The next morning we woke up with a BG of 495, and some labored breathing. Immediately, I checked ketones. The meter said “Lo”. I woke up with a sore throat that day, so we went on with our day. I remember calling my husband and mentioning that I thought he was getting a cold because of a snotty nose and cough. After lunch and nap (5 hours later) BG was 450.  I changed site and corrected, but this time he had the funny look I associate with ketones, plus his breathing was still wonky. This time the meter read “HI”. Our meter tops out at 8.0. This likely mean’t that he was headed for those 3 little letters that any T1 hates to say..D…K…A.

Diabetic ketoacidosis is a problem that occurs in people with diabetes. It occurs when the body cannot use sugar (glucose) as a fuel source because there is no insulin or not enough insulin. Fat is used for fuel instead.

Byproducts of fat breakdown, called ketones, build up in the body. (source)

I called my husband home from work. While he was in route, I administered a sick day dose of insulin via injection. This is usually .5 per Kg. By the time my husband arrived home the BG and the ketones were coming down. We were in the 300 range and ketones were in the 5 range. It had only been an hour and half. I started to worry less, we stayed on top of the situation. Though instead administering the sick day dose via injection we did it via pump bolis. We knew that this was not the recommended way to do it, but we were monitoring so closely and it was working that we weren’t worried about doing it this way. Our reasoning was that the pump would help us keep up with the last time he was given insulin a bit better.

D went to bed about 8 or 9 and slept into the night. My husband and I went to bed about midnight checking a BG once more. At 3 AM I woke up because the bed was wet. D has been holding it through the night since he was about 11 months old. The ONLY time he wets is when he has a high BG. I knew that was the culprit here. So we had a Daddy check sugar again. I believe it was in the 400 range with ketones in the 5 range. He was given another sick day dose. Shortly after getting poked D decided to get up. So he and I went back to his bed room to watch Pixar movies. At 5:30 or 6 I checked sugar again, 500 range and 6.3 ketones. MORE insulin…

Then just as my husband was getting in his car to leave for work, it happened. I was thrown up on. This is CLASSIC DKA. We knew the signs because we had seen them all before. I changed, pulled the sheets back, while my husband cleaned up D. Off to the children’s hospital we went.

They were very attentive, young diabetic with High BG and High Ketones who wouldn’t be. After seeing us, allowing D to nurse, and drawing labs they instructed us to take off his pump and that he was getting a bed in the ICU to be hooked up to an insulin drip. His pH was 7.1 and his BG over 500. I told them then, that I was going to give him an unit of insulin for his Sick Day dose and to cover the carbs that he had just eaten. I was told not to. This was at 9AM.

At 11AM after being brought into the ICU, hooked up to an IV, and more labs drawn (yes that is 2 full hours without insulin after eating and already being high), they started the insulin. When I inquired about his Blood Gasses they said, well he is even more acidic now his blood pH is 6.9 and his BG is still over 500. Well no crap, you let the boy eat without giving him what he needs to absorb it.

 

The experience was as awful as ever, D was placed on NPO.

NPO [L.] nil per os (nothing by mouth).

This included breastmilk. What is the one thing that a 20 month old wants to do when he feels crappy, much less is in a scary place…nurse. So for 24 hours I had to hide. It was awful listening to my little guy cry…momma…momma. Then listening to my husband tell him that I wasn’t there. We tried to just refuse the breast and this was even more awful. He would cry and thrash about clawing for his one peace…breastmilk. Finally by the end of the night he was allowed to eat. Though for some reason the endocrinologist did not want him to nurse directly. So I had to pump, pour a bottle, and give it to my husband. I tried to comfort my little guy, and bottle feed him the second best thing in his life, but he refused and cried some more. So once again I was forced to camp out on the couch behind the bed, and listen to my husband comfort our son.

Momma isn’t here right now. This is the best we can do buddy, come on take it.

That night was awful, 3 times D woke up crying for me. Everytime I would hear my husband console him back to sleep. Sometimes it would take 20 minutes sometimes it would take 45. I am just grateful for a great nurse that not only offered a big kid bed, but brought the waiver for me to sign allowing us to cosleep as she offered. Otherwise, I have no clue how we would have survived. I know it would have happened but I have no clue HOW it would have.

The next day we were told at early morning rounds that we would be released. Then comes the parade of people. First the nutritionist that was concerned because the endocrinologist had the impression that we did not give insulin for nursing, but we did for bottle feeding. How he got this idea I have no clue, but he got the idea just the same. Then she was concerned about D’s lack of grain in his diet, she was concerned of a B vitamin deficiency.  I assure you he is not deficient in any of that. Organ meat and organic meats are some of the best providers of B vitamins, both of which we eat regularly.

Then comes the diabetes nurse. This was the one that according to my husband almost got kicked out of the room.  She came in to discuss his A1C,

  • The A1C test measures your average blood glucose control for the past 2 to 3 months.
  • It is determined by measuring the percentage of glycated hemoglobin, or HbA1c, in the blood.
  • Check your A1C twice year at a minimum, or more frequently when necessary.
  • It does not replace daily self-testing of blood glucose.  (source)

when admitted his A1C was 10.1. This is an average BG of 254. Remember our range is 100 – 250 as prescribed by our endocrinologist upon dx. She wanted to adjust his insulin, because these numbers were indicative of a bigger problem. I explained to her that they were only slightly elevated from our previous THREE endocrinology appointments, and that it could be explained from our previous experience with MRSA. I explained that for 1 week we were dealing with BG that did not support sick day doses and ketones that needed insulin. So we were on a low, high, low roller coaster. Her reply was that 1 week was not indicative of the 3 month sampling that the A1C presented. So I went on to explain that anytime he or I have antibiotics that we have a hard time controlling his sugar, and that we were making adjustments slowly to his basal rates and correcting as needed. For the life of me, I cannot even remember her reply to that. I just remember how accusatory the whole conversation was. I remember her jumping my case for giving sick day dose through the pump, I remember her jumping my case for not calling the nurses, I remember her jumping my case about his A1C, and I remember me ending the conversation with a stern, “WE GOT THIS.”

I got so annoying at one point that, I actually woke my husband up from his nap to deal with it. The tension in the room could be cut with a knife it was so tense, the baby was upset, I was upset, and all we wanted to do was go home.

FINALLY by mid afternoon we were released. We continued to deal with High BG for 2 more days, ketones, and snot for a week more. Just this past Saturday the BG started to come back into alignment, just as D’s cough and snot started to subside. So we are back to using 3U or less a day for both basal and food corrections, and FAR more predictable sugars. That in and of its self is the biggest weight off my shoulders.

 

Next breathtaking hurdle, 1 year labs.

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I like bugs, just not these bugs

We are currently battling Methicillin-resistant Staphylococcus aureus (MRSA).

With an insulin pump you have to move infusion sites every 3 to 5 days, according to the manufacturer. However, as an opportunity of being young we have to change more frequently due to skin senstivity. If we don’t, we encounter a bad site complete with poor insulin absorption and possibly a granuloma, if not full rejection. Yeah that has happened to us. Imagine waking up to an infusion site in the bed, a soaking wet infant, a sky high blood sugar ( did you know that meters will tell you to consult a medical professional instead of giving you a number? ), and a baby with a nasty sore.

A few weeks ago we had a site go bad early. It wasn’t any different than any other bad site, bad blood sugars all day, always needing a teeny bit more insulin for correction. For several days it looked fine then…bam. One day it started to swell. The next day it looked like this:

image

It was draining and red and all sorts of gross. I immediately started in on colloidal silver and tea tree oil. The next day it was visibly better. We weren’t concerned really until ketones presented. So we scheduled a doctors appointment. We felt that we had the ketones under control, especially since his BG was not effected. After several treatments of colloidal silver, tea tree oil, and magnesium bentonite clay. I was able to get it to look like this in just 24 hours.

image

It was red and swollen and the doctor freaked out. He started in on how he felt like it might need to be surgically drained and how the abscess was probably the size of a golf ball. We were immediately sent to the closest childrens hospital. Where we waited for several hours, despite being transferred by our network affiliated pedi. They had us with hold all food or liquids until the dr saw us. Have you ever had to withhold food and water from a starving toddler? Especially when you know that is what is required to flush the toxins (ketones) from his body. Then the doc comes in tells us he D is on the verge of being admitted and possible surgery. Of course, would put any mother into crisis mode. I am convinced they do it on purpose. He ordered a sonogram, labs, and IV fluids and Clydomyacin STAT. He allowed D to eat, but then drew labs. 2 hours later he freaks out about a high blood sugar.

Hello buddy you let my kid eat then drew his BG. I didn’t go to medical school, but even I can tell you it was going to be high. Immediately he says D can no longer eat, “because his sugar is out of control.” Not only that, but you can’t withhold food from a kid simply because his BG is high. Trust me he is eating healthy, TRUST me. Correct his BG and move on. Either take the labs first, or expect a high sugar. In fact, when I did try to correct him based on their BG reading his pump said his BG was spot on for his active insulin. MEANING, that his body was functioning exactly the way it was expected to, we were just waiting for his insulin to kick in. What a dumb@ss.

After all of this, we find out that the infection isn’t even half as bad as it was suspected. The sonogram confirmed that it did not even breech the first layer of skin and was millimeters wide. That is a pretty small golfball. In fact, I am pretty sure that Polly Pocket wouldn’t be able to play golf with one that size.

We head home and continue to treat with silver. Actually as I write this post I am able see that what we were doing was making a great difference. In fact had it not been for the ketones, we would have never gone into the doctor. I hate that too, because for days we were stuck in the what if game. What if we are making even more resistant bacteria because he already had one dose? What f he doesn’t get better? What if I end up putting my kid in the hospital?

I remember the real turning point was two days later when I put him in his high epsom salt bath and junk just came pouring out like snakes on a plane. Haha. It was gross but good. 

1 full week later here is what the site looks like, silver did the killin but the mud did the healing. The funny thing is that my husband, had to CALL the hospital days later for the results of the culture. Yup it’s MRSA, and according to whomever he spoke with, MRSA is the new Staph. They just expect all cultures to come back positive. ::eyerolls::

image

So now that we have been exposed and infected, we will just be waiting for the next time for this to happen.

So what did I learn this time?

  1. Dont jump to conclusions
  2. Western medicine gains control by use of fear
  3. Follow your heart not your fear
  4. Educate yourself
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Setebaib

Let me preface this with:

This isn’t mean’t as a bash on those who do treat with juice, but is more intended as a different perspective on how things CAN work. It is intended more as a food for thought and should be taken as such.

Setebaib…? Sometimes I feel like diabetes is so backward, that it needs to be spelled backwards.  Diabetes is the only illness that I know of where people PURPOSEFULLY try to match their symptoms to their medication. Not only do the patients and caretakers do that, but they are regularly encouraged to do so by their doctors.

What do you mean Tiffany?

If I had high blood pressure, and was put on medication for said BP and instructed to come back in 3 months for a recheck. My doctor would not tell me to eat more salt if my BP was too low. Would he? No that would be stupid. He would adjust my medication and ask me to come back in 3 months.  The same is not true for diabetes or setebaib. I know an adult T1 diabetic who for several weeks was waking up with extreme lows (40s-60s). Instead of adjusting her basal insulin, her solution was to drink a protein drink before bed. My question is, if she wasn’t hungry and her BG was within range before bed, why was the influx of calories, carbohydrates, and protein necessary? The pure and simple answer is it wasn’t.  Of course this is no fault of her own, she was just doing what she has been trained to do by her doctor.

It’s a mindset

For some reason the medical community has adopted this mindset that since diabetes is not cureable and life sustaining medication is needed life must revolve around insulin. I do not subscribe to this philosophy. My child lives BECAUSE OF insulin, not FOR insulin.  My goal is to give him as little of it as possible without compromising his health. Another example, recently I was on a forum of diabetic mommies. I introduced ourselves and mentioned how insulin sensitive we were. A few hours later I received a reply about how said mommy’s child WAS insulin sensitive also. My first thought was OH AWESOME! somebody to share thoughts and concerns with. THEN she mentioned how her child got “BETTER” and is no longer so sensitive. I did not delve deeper into a conversation with this mommy and I know I am still new at this, but I don’t ever consider the necesity of more medication “BETTER.”  Honestly though, who would? Once again, this mommy is just following her doctor’s advice. The doctor says this is better so, so she must be. The only other thing I can think of was that her child was tanking out alot and that has resolved itself. 

It’s a Balancing Act

Yes, when we have lows I do still treat with carbs. Usually, we just nurse. Breastmilk is high in fat, carbs, and the best part is that breastmilk is alkalining. More on that later though. The point is that we chose our carbs carefully. If I were to give straight sugar then I am doing my son very little good.  Juice, unless done by you and consumed immediately, is not nutritious.  It’s true, google it and you will see most all vitamins and minerals oxidize and are worthless in juice within 5 to 15 minutes of being juiced. So by treating a low with commercial juice, I am doing nothing better than feeding my child a spoonful of sugar – not very nutritious. For those who are not nursing any longer, I have read that drinking a green smoothie will work well while not contributing to the sugar wheel. We have not treated with this yet simply because it is diffcult to get him to try anything other than breastmilk when he has a low, but I am hopeful for this solution when we are weaned.

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Where Do We Go From Here

image

Photo Credit

When we started our diet months ago, I was super excited. I continue to be excited about it, but feel like I am losing momentum in the excitement realm at least. Yesterday we had an Endo appointment, and ABSOLUTELY nothing has changed… at least as far as D’s A1C is concerned. He is still a 9.8 which is an average of 240. This number is within range, but they still are not pleased with it. They made no adjustments to his insulin. I guess I should be happy that we used less insulin to get the same result as 3 months ago, but uggh. After some in depth conversations we agree that there are several factors that are contributing to this reading. A) D is still nursing and B) he is eating contstantly, so we are constantly playing catch up. Our Endo assured us we are doing a phenomenal job, and they aren’t worried about his A1C at this time. They said at his age we would be lucky to get it below 9. This is reassuring, but we are in a diet that is supposed to be helping with this!

Am I doing something wrong? Is all my work for not? Is this diet a whole big thing of hogwash? Would weaning my son be the best bet? These are all questions that are swarming around in my head.

We are still transitioning into being fully GAPS legal. This weekend we finally got rid of the remaining nonstick pans in our collection. This is definitely something you have to ease into. Otherwise the costs would eat you alive. I am still set that diet is the way to go, though we may need to make some tweaks in the weeks to come.

All I can say is, continuous glucose monitors rock. If not for that thing, I would be so lost as to where this high A1C was coming from. As everybody knows we are still nursing, and according to 180 Degree Health Breastmilk has a similar carbohydrate make up to ice cream. So it does make sense why his sugar would be elevated over night, when he is almost constantly nursing.He usually eats approximately 110 carbs a day, and those are solely from nursing. If he puts anything else in his mouth the carbs are minimal. When I look at the trend graph on the CGM it looks like D peaks out about 11PM and rides the high the rest of the night. Sugars stay constant, because he is constantly eating.  So I am left to wonder which is more beneficial to my son, extended breastfeeding or keeping his sugar low at. He nurses miminally during the day, maybe 2 – 4 times, and I fear that night weaning will lead to straight up full weaning. This is not something I am fully prepared to do, and I KNOW he isn’t. The boy has boob-dar. He can find a boob with his eyes shut, and latch without even waking up. From the beginning I have always said, we would not be having that conversation if he was 100% healthy but now I am starting to doubt if my stubborn nature is getting in my son’s way of being healthy. :/

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Posted in: Diet, GAPS, Medical, Ramblings

6 Months

5

 

Well it has been 6 Months today since our family life changed so dramatically. About this time 6 months ago, I was cuddling my baby that had a “stomach flu” hoping so much that I could make him feel better.  Little did I know everything that I THOUGHT was making him feel better was making him feel absolutely worse.

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The lesser of two evils??????

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So one of the “great” things about being on an insulin pump, is that you don’t have to stick yourself or your child several times a day (once a meal). This really appealed to us. No body wants to hurt their baby several times a day . So the idea of only poking my son every 3 – 5 days really appealed to us. I mean after all we were already poking him 10 times a day for BG testing.

When we left the hospital we had decided to change sites every 4 days. I even set a reminder on my phone. That did not last long at all. The very first site we put in D’s little body got fire engine, angry red, by day 3. The site was on his butt, inside his diaper. I wasn’t sure if the inflammation was due to him falling and bumping his rear on an hourly basis, or what. So we agreed to pay more attention to them. We have now had two infected sites, one of which fell out over night…YIPES. If we do not change his infusion site every 2 days. Yes I said EVERY OTHER DAY, then he will have a nasty red pock for weeks to come. There was a time when we were running out of places to stick this poor boy. PLUS if we do not change our infusion sites every 3 insulin absorption goes to pot and the whole system becomes ineffectual.

I am being very vain here, but up until now my child had not a scar or a blemish on his body. He has creamy white skin and sandy red hair.  I worry about how these marks are going to heal on him.  Honestly it has kept me from moving his infusion sites to his belly, for fear of long term scaring. Growing up is hard enough, but to be “disfigured” is even harder.  So when he grows up and starts going to attend swim parties (We live in Texas there are 3 pools to every person), or even swim practices (if he follows after me), I don’t want him to have yet another thing to be self conscious about. At least on his legs, his leg hair will hide it, and despite the propensity for teenagers to show their butts hopefully that will be covered….most of the time.

We know for an absolute fact that this reaction is caused by insulin. Simply because we had a bout of flu-ish symptoms around Thanksgiving. For 2 days, D ran fever in the 103 range and we battled ketones for the entire time.  In that time, D’s insulin usage skyrocketed to over double his normal usage, and in that time his site went bad within hours of being placed.  When I say the site went bad, I mean it lit up like the Christmas lights outside and formed a little granuloma. I am sure some would say that it could have been because he was sick, but I do not think so.

So now I am left to wonder what the insulin is doing inside of his body. Here is where the lesser of two evils comes in. Obviously he has to have insulin to survive, but this constant inflammation cannot be good for his system.  I still pray that one day in his life we will find a cure for this. Whether it be diet or otherwise. Insulin is just a bandaid on a gushing wound and I honestly get a pit in my stomach when I think about this long term.

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The BIG V

Let me preface this post by saying… I believe that making the choice to vaccinate is as personal as the type of birth control you use. There is no right answer and there is no wrong answer. There is a lot of evidence to support either side. We as a family have chosen to stop vaccinating for many reasons. We were not sure when we started if we would continue and we have decided that rather than continuing on blindly we will take a break and reassess at a later date. A chiropractor once said, “Your choice to vaccinate or not vaccinate is saying to the world that you are aware of the risks associated with your choice, you have fully educated yourself, and feel this is the best choice.”

For my family, the best choice for us is to hold off. Since we were not sure at birth, we did ask our Pedi if he would be willing to work with us. He agreed, saying that, while he really encourages people to vaccinate he would be willing to accept a patient that was not vaccinated. This was a far cry from the previous Pedi that I talked to that said, “If your child is not vaccinated you are not welcome in the practice, because you put every other patient at risk.” This of course was pre dx.

Recently, we went in for our 12 month check up. While we were there, we went through the same old song and dance.

DR: “Are you ready for some vaccinations today?”

ME: “He is supposed to get his MMR, Varicella, anddddd…..?”

DR: “Hep A, and I highly suggest Flu with his underlying condition.”

ME: I am really not comfortable going forward at this point in time. I think that we will hold off and make our decision later.

DR: “I sincerely suggest the Flu vaccination. With hes underlying condition catching the flu and being under 2 is almost certainly a trip to the hospital and weeks stay.”

ME: “I understand, my husband and I did not even consider the vaccination before coming. I will talk with him and schedule a nurse visit if we deem it necessary.”

DR: “Ok, I really do encourage you to do so.”

While I understand that he was trying to do what was best for both my son and my family. I do not like this approach that western medicine has started in on . The approach is scare the pants off of you until you do what they want. UGGHHH. 

I have done my homework on MMR and I am uncomfortable with a decision at this time. I have done my homework on Varicella and would like to delay that to early puberty if we don’t contract the virus naturally as is preferred. I have not really done any research on Hep A as MMR has been the primary focus of the available literature – Thank you Jenny McCarthy. 

What I DO KNOW is that vaccinations disturb, if not annihilate,  beneficial flora in the intestine (SEE Source). At this time we are focusing on restoring that and are avoiding damaging substances until that balance is restored.  However, we will compensate with a nutrient dense diet, proper supplementation, and a good regiment of hand and surface disinfecting.  Vaccinations are in no way a guaranty that my child will not get sick and in some cases the havoc reeked on the body is enough to put them in a heightened immuno-comprised state. (See previous flora statement)

 

What are some of the crunchy ways that you prevent illness in your household?

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Clinic Visits – 1

doctor

 

So not everything has to be about diets here.

Part of the Endocrinology program is here is attending clinic. Last week was our first clinic visit, and I am none to pleased with our nutrition team. When the dietitian starts off the visit with, “If you don’t have any questions we can just be done here,” it is never a good sign. Seriously she greeted us that way! Really!?! Really?!? Then when we said we were going to try a diet, she started acting interested and asking questions like..well if you are eliminating dairy how is he going to get probiotics? Yogurt isn’t the only place to get that stuff you know. I mean seriously. She ended the conversation with..”well as long as he gets all of his vitamins and minerals.” Nope we are going to cut that out too. UGGH.

For the most part I think that the team we have is good, though. We really do rely on the Diabetes Educators a lot. I like most of them as well. We still have not met our new Endo yet. We were not placed on our Critical Care Endocrinologist’s service as he is the department head and fully booked. Hopefully, we will like the new one since the original one is my Superman. Since he swooped in and saved my baby from imminent death. :

Clinic Topic

So the topic of our clinic visit was, long term complications. Of which here is an abbreviated list:

  • Celiac
  • Thyroid
  • Kidney Problems
  • Retinal Detachment
  • Crohn’s
  • Heart Problems
  • Neuropathy
  • and the list goes on

 

The best part was when they told us that even if we keep him healthy that he is at a higher risk of of these because they are autoimmune as well. This IS NOT the life I had envisioned for my son, or for us for that matter. I had a completely healthy, blemishless little guy at one point, and now I am worried about EVERYTHING. My husband feels like I obsess too much, but it’s a big deal. Ugggh, next post will be much more cheery. I promise. Just getting this off my chest.

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